THE WRITER’S LIFE
Video podcasts of my bedtime stories will be coming soon
A couple of years ago, I posted an article based on one by CultNoise, about depression, anxiety and borderline personality disorder. Mental illness is largely incurable, and can often mutate and metamorphose in the sufferer. Mine has. But like many others, I embrace mine, because it’s made me the unique individual I am and allowed me to write.
Most mental health conditions are measured on spectra, so a person with more than one condition (most people with mental health issues) will often have multiple diagnoses placing them in various positions within a spectrum. With so many mental health conditions and such wide spectra, it’s not difficult to see how each mental health “patient” is unique.
For my own particular cocktail, I have chronic depression and anxiety (with “Chronic” defined as life-affecting), with borderline multiple personality disorder. I also have psychopathic tendencies. This doesn’t mean I’m a psychopathic murderer; It means that I am psychopathic about some of the things I do, to the exclusion of all else.
There are eminent surgeons who are clinical psychopaths. What this means in the context of their jobs, is that they are able to perform sometimes highly risky procedures, where there is a real danger of permanent trauma, or even the death of a patient. But the psychopath mind is such that it can concentrate fully on something like neurosurgery, perhaps to remove a tumour in order to save a life, when there may be a real risk of damaging a nearby nerve and causing total paralysis. I’m no brain surgeon but I’ve taken it as a compliment when I’ve been called a psychopath writer.
Two years after writing that article, many things have changed. My mental health issues have at once become worse as my anxiety in particular has increased, but also more interesting. But still, I’m unique, like everyone else who has a mental illness. The point of that article was to raise awareness of something which anything up to 1 in 4 of us will be affected by at some point. For some, it will be temporary: Post Traumatic Stress Disorder (PTSD) following a bereavement is usually temporary and treatable in isolation. I have PTSD diagnoses piled on top of each other (a knifepoint robbery; the breakdown of my marriage and estrangement from my children for a while; Homelessness, and the many traumas one encounters in that situation…). So for others, it’s a life sentence. And although we’re all different, we do understand that we’re difficult to deal with at times. We don’t understand ourselves. So even though my conditions have evolved, nothing has changed, and this could have been written by anyone with a mental health issue:
I don’t need to be handled with kid gloves.
I’ve got mental health issues, but this doesn’t mean that I’m ‘broken’. Do not talk to me like a cat you just saved from a tree; especially when you never cared before. My pet peeve is the head tilt with “So how are you feeling?” from people who previously would never have spoken two words to you and now feels the need to partake in charity. I would be grateful if this was at all sincere, like with loved ones. There’s always one loved one who tries to wrap you in cotton wool and is terrified to even go to the shop, for fear of leaving you alone. Please do not stop your life for me.
You can tell me your problems, I can handle it.
If you are my friend or significant other, please share your feelings and worries. Just because I am dealing with my own problems does not mean that I cannot listen to yours. I can handle it. In truth – focussing on someone else’s problems makes me forget about mine for a while. Also, it feels like I’m being a good friend Normality is key.
I don’t mean to hurt you.
For friends and family of those suffering from depression, life can be just as hard. Watching someone you love struggle and cry, in some cases self-harm and attempt suicide, is hard to understand and accept. We know that and feel very guilty. Unfortunately, depression can be a very selfish illness. Sometimes we can be unintentionally harsh and mean, but most of the time we don’t mean the things we say. It’s out of hurt. The best defence is a good offence and all that. Often we can push people away to ‘protect’ them from us and it just results in hurting them even more. If we take it as far as to try and hurt ourselves to stop the suffering, it is no reflection on them. At that time all you think about is the all-consuming beast that is depression. Without a doubt, it is a challenge to love and care for someone with depression.
‘Am I wearing a sign?’
Paranoia often comes hand in hand with depression, along with the fear that people are judging you or talking about you. It often feels like you are wearing a large neon sign that says ‘I HAVE DEPRESSION’. The thing is – it isn’t noticeable. Depression isn’t like a broken arm or leg – you can’t see it. Somehow, because it feels like such an overwhelming factor in your life, you think others can see or sense it too. People do not have spidey senses. Those with depression look just like everyone else. We are sneaky individuals.
Sometimes it can feel like I am two different people.
When we get really low, it can feel like we are two different people: one is the true us and the other is an emotional, grumpy wreck. Rather than feeling like we are both people, it’s important to remember that the ‘other’ you isn’t you: it’s depression. It can be helpful to disassociate yourself from the ‘other’ you. Winston Churchill referred to his depression as ‘the black dog’. My depression is my shadow: darker in the sunshine. Whatever you call it, remember that it isn’t you! Also, it’s important for us to have others recognise that there is a difference too. I am not my depression.
If I don’t take my tablets, do not yell at me.
Some people take antidepressants to help manage depression. It is not everyone’s cup of tea and that is each person’s personal preference. It is not uncommon for people who are on them to suddenly stop taking them. Admitting there is a problem can be hard. Sometimes they are helpful, despite the side effects, but sometimes they just make us feel worse. The thought of having to take pills to make yourself ‘normal’ can sometimes be distressing. However, the sudden withdrawal can cause a slight meltdown. The worst thing you can do is to yell at someone to take them. That is no use. Imagine you had to take tablets to be happy every day, because your brain didn’t make the right chemicals. It can be upsetting. Logically explaining and understanding the frustration is much more helpful. And hey, sometimes we just plain forget.
Depression and being sad is not the same thing.
Being sad is a normal human emotion. It is reactive. If something bad happens to you then you become sad and then it relents. There is some opportunity to ‘cheer you up’. It is not constant, but depression is. With depression, someone could offer you a trip to Disneyland on the back of a unicorn and you would not even crack a smirk. It is relentless and life-altering. It can change your personality, interests and goals in life. It can last for weeks, months or even years. If we compare depression to cancer (which a lot of people do not like) then sadness is a benign tumour. It is horrible but treatable. It is not life threatening or cancerous. Depression is a malignant tumour. The cells grow out of control, become cancerous and potentially life threatening – they spread throughout your body.
I know you are trying to help, but don’t try to give me medical advice. I know more about my diagnosis than you do.
This includes: “have you tried exercise?”, “maybe it’s your diet?” and “it must be hormones”. Honourable mentions go out to: “are you sure you need medication?” and “have you tried reading the Bible?”. If you have had depression for a long time, you will have heard some of these at least once. It’s nice that people are trying to be ‘helpful’ but if you have had it long enough then you will know everything about the medication, diagnosis, causes and treatments. Each person is different and knows what is best for them. What works for one person may not work for another. For those who are new to it all and do not know what to expect, the best advice comes from actual medical professionals and those who have been dealing with it for a while. They can tell you the various routes you can try but, in the end, only you know what is best for you.
This is not a choice.
Why would anyone choose to be depressed? It can mess up your relationships, work, studying and family. Nobody wants to have low moods all the time or to be such a challenge. People do not choose to have flu or polio; it is not within your control. There are ways to lessen the chances and practice good mental health, but no one can 100% say it will never happen to them. We have not “brought this on ourselves” by life choices and we are not weak.
It can also be physically painful.
This is something that many people do not understand. Sometimes depression can be physically painful or uncomfortable. Most of the time I liken it to a lead weight in my chest or like someone has punched a hole straight through me. Chest pain, headaches, back pain and muscle aches are common problems associated with depression. Sufferers can also experience fatigue, loss of appetite and sleep problems. Sometimes medicines which help with depression can change the chemicals involved in nerve cell communication. This can make them more effective, and potentially become more sensitive to physical pain. Depression can also slow down the digestive system, resulting in stomach problems.
Having depression does not make me ‘depressing’.
I’m a nice person, really. Most people who know me would describe me as such. However, sometimes people don’t want to invite you to places or hang out with you because they assume you will be in need, of company; of attention. We do notice how others react to us. I am not going to go to your house and cry into a wine glass, while I tell you how difficult it is to be me. To be honest, most of the time we are feeling super-down we don’t actually want to socialise anyway. There is no point in going out just to be ‘depressing’. We can be fun and interesting even with the depression, just some days are worse than others. On most occasions, people would not even know we suffer from depression because we are as sociable and upbeat as everyone else. The thing is, people do not know what is going on inside your head. The strongest looking people can be the ones fighting the hardest battles.
I don’t want to be a burden.
When you have depression you often have to rely on at least one other person to keep your head above water. Knowing how difficult it can be to accompany us on this roller coaster of emotion, we often feel guilty about it. We don’t want to put anybody out or to be a burden, especially on our loved ones. You have to remember that they wouldn’t be there if they didn’t want to be. If they care enough about you, then they will never consider you to be a burden. You have to ask for help when you need it.
Sometimes I just don’t want to socialise. It’s not personal.
On bad days, we may not want to see anyone or socialise. Sometimes the pressure of trying not to be ‘depressing’ in a social situation is too much and so avoiding it seems like a better choice. We just want to be free to feel our feelings. Support and friendship is always appreciated, but sometimes we just need some space. It isn’t personal. Knowing you have got friends or family willing to be there if you change your mind makes the difference. Just don’t push us to socialise when we are not willing because then it could spell disaster or even cause us to feel worse than before. Trust that we know what our head needs.
This isn’t a ‘trend’ or ‘cool’. If you had it, you would understand.
Films and TV shows paint depressed people as being cool, edgy and moody. This is so far from the reality. Depression isn’t sexy. Crying for hours on end, unable to get out of bed and sleeping all day is not sexy. Trying to ‘fix’ a damaged person is not some sort of Xbox achievement, so don’t enter into a relationship with a depressed person unless you actually care for them. Actually typing ‘depression is sexy’ into Google brought up disgusting pages from uneducated idiots, who quite frankly need high fived… in the face, with a chair. To say that people who are fighting it are sexy, because they are strong, badass individuals, is much more acceptable. It seems, at the moment, that depression is the new black. It’s not a badge of honour or pride; it’s a poisoned chalice. Self-harm is not trendy or to be used as a way to keep your favourite band member from leaving. Children need educated to know that these are serious issues and that this type of publicity is irreparably damaging to mental health advocates. We are trying to end a stigma, not make it trend on Twitter.
On occasions, our thoughts scare the shit out of people.
General melancholy becomes quite normal as do the weird-ass things you sometimes say. Some people may not see it that way. Telling close friends, very matter-of-factly, the ways you tried to commit suicide may become quite normal to you, but not necessarily to them. We can scare the shit out of others, but we don’t mean to. This is our normality. Being depressed tends to mean you think more about life and the meaning of things.
To be honest, once you hit that low, you stop caring about what other people think of your opinions and ‘crazy thoughts’. We may also act a bit differently and spontaneously. For example, I once sunbathed in the rain. These aren’t cries for attention – the way your brain functions just becomes a little different… and weird to some.
I am very unpredictable.
One second I can be okay, the next I will be crying. No, I don’t know what is wrong. Nothing happened. Story of my life. Things are never fantastic, but they aren’t always horrible either. They are just… Depressed people don’t become insanely happy: that is manic depression/bipolar disorder – a different kettle of fish. Those of us in that kettle have a whole load of other things we’d like people to know and we are even more difficult to deal with simply because we are so complex. It’s often like someone just flicks a switch and we suddenly become inconsolably upset. There is not always even an explanation for it or, if there is, it’s something small. The smallest tasks can sometimes feel like a mountain to climb. Don’t be surprised if we cry over spilling a cup of tea or losing our keys. It happens!
Small achievements to you are massive to me.
Reaching little goals that we set ourselves are a massive deal. Most people aim to get good grades or get the promotion of their dreams – sometimes just being able to get out of bed is an achievement. So do not knock us down when we achieve them, instead be proud of us! They may seem minuscule to you, but to us, they are each a step closer to recovery and seem as difficult as any task that you attempt. Some day we can aim for bigger things, but today is just about getting healthy.
I can be really challenging, but if you put the effort in, I will be the most loyal friend.
Without doubt, being friends with someone with depression is hard work. It can be exhausting, frustrating and upsetting. When you suffer from depression, you truly see who your real friends are. Many friends will desert you, but you discover that they were never really friends at all. As hard as it can be, we treasure the ones that stay more than anything. And we are guilty of not showing our gratitude to them. We do not take you for granted. Things may be tough, but we are eternally grateful for your love and support. That makes us some of the most loyal friends to have, next to Labradors. The effort is never forgotten and helps to create a bond that few other friendships have. You both also know, that no matter what shit either of you go through, that you will be there for one another. You aren’t fighting alone.
When I speak about it, it’s not for attention, it’s to raise awareness and end stigma.
When people, such as me, speak out about their experience of mental health issues, they are often met with hostility and judgement. People think it is being done for attention. Therein lies the problem. There are so many stigmas about the issues and the things that I have mentioned that people associate many mental health advocates as attention seekers. Really, all we want to do is talk about the issue.
We share our experience so that others know that they are not alone.
Talking openly about the issue will make it less of a taboo.
Do not be ashamed to talk about mental health. Talk to those of us who know.
And like many others, if someone offered to take my mental health problems away, to “cure” me, I wouldn’t let them.